This week's VNB Community Counts video goes over the the following points:
1. The Cystic Fibrosis Foundation has fueled dramatic improvements in research and care that have significantly changed the prognosis for people with CF.
2. In 1955, children born with CF often died before reaching elementary school. Today, the predicted median age of survival for people with CF is more than 37 years.
3. To quicken the pace of drug discovery and development, the Foundation has pioneered an innovative and highly effective business model using the same results-driven approach of a for-profit company. 4. The Foundation has committed hundreds of millions of dollars in collaboration with the biotech industry to fuel the search for new treatments and a cure.
5. The Foundation is one of the most effective and efficient organizations of its kind. It has received a four-star rating for sound fiscal management from Charity Navigator, the largest independent charity evaluator in the United States, and is an accredited charity of the Better Business Bureau’s Wise Giving Alliance.
6. Virtually every approved CF drug available today was made possible because of Foundation support. Since the 1980s, the Foundation has played an integral role in the development of Pulmozyme®, TOBI®, azithromycin and hypertonic saline, essential drugs for the treatment of CF.
7. For the first time in the history of the disease, CF clinical trial participants are taking oral drugs aimed at treating the basic defect in CF (a faulty protein). If successful, these drugs could add decades of life for people with the disease.
GREAT STRIDES Talking Points
In 2008 Great Strides Charlottesville raised over $32,000
Join us tomorrow, May 16 at Lee Park for Great Strides. Registration begins at 9:30am, a 2.5 mile walk begins at 10:00. Pizza, music and fun to follow!
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