Doctors said he wouldn't live to see his third birthday, but a Louisa County four-year-old is a fighter. He is an amazing little boy who has defied medical expectations, but is still hoping for a cure.
“I don't want an autopsy to tell me what's wrong with my son,” said Dawn Williams, Nicholas’ mother.
Four-year-old Nicholas Williams spent the first five months of his life in the hospital. Test after test and doctors still didn't know what was making him sick. They did know however, they could not help him.
“Bring him home because he's going to probably not make it past two and you'd rather him be at home with family and being loved,” said Williams.
Nicholas suffers from apnea, epilepsy, anemia, reflux, deteriorating muscle tone, an injured lung and severe allergies. Every night he sleeps with an oxygen tube.
“As a mom, you go to bed at night kissing him wondering if it’s going to be the last,” said Williams.
Every day an airway clearing vest and nebulizer help him breath.
“Now he is walking he's talking,” said Williams, which is something doctors said he would never do.
But in June, Nicholas took a turn for the worse. He started gagging and stopped breathing. His sister called 911. His mother administered CPR for 45 minutes waiting for paramedics.
“I don't think unless you're there you can describe what you feel. You know is he gonna’ pull through or are you holding your child for the last time,” said Williams.
Nicholas pulled through, but his family says he hasn't been the same.
“I'm not ready for him to go and I said, ‘God, if you are telling me this is going to be a rough road, I accept that, whatever it takes to be his mom I will do, but I don't want the out’,” she said.
Neither Nicholas nor his family will give up hope of finding a diagnosis or a cure.
The Hope for Nicholas Foundation is holding a Spaghetti Dinner in Gordonsville Saturday, January 27th at VFW Post #7638 on 10271 W. Gordon Avenue to raise funds for Nicholas' treatments and to find a cure.
Tickets are $10.00 and you can buy them at the door or in person.
You can also make donations through the www.hope4nicholas.com website.
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