Caring For Kelli

By: Elizabeth Donatelli Email
By: Elizabeth Donatelli Email

March 15, 2007

The Fraziers are like most families. Mom and Dad work, but spend as much time as they can with their 6-year-old son and as much time as they have left with their 2 1/2-year-old daughter.

"Kelli was diagnosed on Nov 27th, 2006 with metachromatic leukodystrophy, also known as MLD," said mother Lisa Frazier.

Kelli was a normal child until she was 18-months and started walking. But instead of getting stronger, she got weaker.

"She is having difficulty sitting-up. She sits crouched down now," explained Frazier. "Eventually she will lose communication so she won't be able to talk and she will lose all of her bodily functions. She will lose her sight. She will lose her hearing and eventually if she makes it, she will end up in a vegetative state."

There isn't a cure. It's a parent's worst nightmare. Her neurologist said Kelli has anywhere from a few months to one and a half years to live.

"You would never know that she was having this crisis in her life if you looked at her day-to-day. She just keeps all the balls in the air and she juggles everything so well," said Mindy Burke both co-worker and friend of Lisa Frazier.

Instead Frazier spends as much time with her daughter as she can, moving to a part-time position.

"We spend time on the floor playing or watching Elmo, or Baby Einstein," said Frazier.

But with this job shift comes more bills, bills that include needed equipment that insurance might not completely cover like a stander so the Fraziers are relying on the generosity of others.

"It has been absolutely incredible and a very humbling experience," said Frazier.

Frazier's co-workers at Stoney Point Elementary School are just one of the many groups fundraising. So far they have raised $5,600.

"Even our third graders had a bread sale and they brought in over $250 recently, so it's just gone above and beyond what we ever anticipated," said Burke.

Mrs. Frazier's goddaughter went before The Lions Club Board to ask them to sponsor a child with special needs. Just a few weeks ago, Kelli was crowned the first special needs princess at the pageant.

If you want to donate to Kelli you can do so at any Wachovia Bank in the Kelli D Frazier account.

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